Thursday, October 30, 2014

More Than a Number

I am more than a number.
 I am a child with dreams and determination.
I want to succeed. I want to be healthy.
 I am listening, learning, doing my best.
I'm staying active. I'm eating right.
 I am the victim of a system that fails my family,
fails to educate, fails to innovate.
I thrive in spite of the standards. I rise above the average.
In more ways than one.
I try new therapies boldly, but blindly. Alone. Terrified.
I sing, I teach, I shine. And I struggle.
 I am more than a number.
I'm a woman with dreams and determination.
 I find partnership. I discover community.
We are more than our numbers.
I am a woman, a mother, and I'm still listening, learning.
I rise and fall, ebb and flow,
knowing that there is much I don't know.
I am not a statistic.
I am a human being.
I am more than a number.
So are you.

Tuesday, September 30, 2014

D-Parody: I'm Still Here

I'm Still Here
(a D-Parody of Elaine Stritch's Live at Liberty recording of Sondheim's "I'm Still Here" from Follies)

High times and low times, I've seen them all
and, my dear, I'm still here.
Stocked closet sometimes,
Sometimes syringes and tears,
but I'm here.

I've found test strips in my shoes,
miscalculated, sung the blues.
Seen all my hard work disappear,
but I'm here.

I've slept in the ER,
courtesy of DKA,
but I'm here.
Tangled with PR
when they muck up what they say,
but I'm here.

I've heard cutting edge talk from the best.
Counted exchanges with the rest.
When I couldn’t get pregnant,
was I depressed?
Pretty near.
But I became a DOC-er,
so I'm here.

I've gotten through diabetic coma.
Gee, that was fun and a half!
When you've been through diabetic coma,
anything else is a laugh!

I've been thru Saccharine, Splenda and Truvia too,
but I'm here.
Drank Diet Dr. Pepper
back when the cans were blue,
and I'm here.

Tried every gadget, every tool,
Still I don't log as a general rule.
I should've gone to medical school,
That much seems clear.
Still someone said, "She's been there",
so I'm here.

Target range one day,
next day it flies out of whack,
but I'm here.
Roller coaster Monday,
Tuesday, you're back in the black,
but I'm here.

First, you're a poster child they turn out,
then careening through college,
then you're burnt out,
Then you see CDE to CDE to CDE.
I've almost got this thing figured out,
so I'm here.

I've gotten through,
"My grandma had diabetes.
She lost both her feet.
Or better yet, "My dad used to have diabetes,
but, you know, he got the thing beat."

High times and low times, I've seen 'em all
and, my dear, I'm still here.
Stocked closet sometimes,
Sometimes syringes and tears,
but I'm here.

I've run the gamut of A1cs
15 to 5 dammit, C'est la vie.
At least I got to be here,
and I'm here!
They said there’d be a cure in five years
but I'm here!

I’m still here!
Look who's here!
I'm still here!

Sunday, September 28, 2014

D-Parody: 365


365
(a D-Parody of Dolly Parton's "9 to 5")

Tumble out of bed
and stumble to the kitchen,
Pour myself a cup of ambition.
I check my number,
try to come to life.
Consider my clothes
ever since I've been pumping.
Blood sugar climbs as
blood pressure’s thumping,
For folks like me, with the D, for 365.

It's 365 days a year without vacation.
Just to stay alive,
and stave off the complications.
Those without can't see
and they never give you credit
It's enough to drive you crazy
if you let it.

It's 365 days a year of shots and bleeding.
It's the ups and downs
and the questionable readings.
Try to do my best,
but they call me noncompliant.
It's enough to make you angry and defiant.

[mmmm]

You get to work
and your number's climbing
Meet with a client,
couldn't be worse timing.
You check and treat
and hope it goes back to range.
You head back to your desk
'bout the time you're dropping.
Right about then,
the boss man is stopping.
You make small talk
and hope you didn't sound too strange.

It's 365 days a year without vacation.
Just to stay alive,
and stave off the complications.
Those without can't see
and they never give you credit.
It's enough to drive you crazy
if you let it.

It's 365 days a year of shots and bleeding.
It's the ups and downs
and the questionable readings.
Try to do my best,
but they call me noncompliant.
It's enough to make you angry and defiant.

It's 365.
No time off for good behavior.
Just to stay alive.
It's no love, but all the labor.
It's the counting carbs
and the constant health minutiae,
and the a1c to which doctors would reduce ya.

It's 365
and ten times as many blood tests.
It’s the lows and highs.
Ain’t nobody needing this stress!
It’s a healthcare game,
no matter what they call it.
You spend your life putting money in their wallet.

It’s 365!
Man, I didn’t even notice.
It’s 365!
Damn, did I forget to bolus?
It’s 365.
I don’t even know how my blood sugar got to be 365.


Friday, September 19, 2014

D-Parody: Normals


Normals
(a D-Parody of Lorde's 2014 "Royals")

Diabetes is my daily stress.
I cut my flesh to check my blood glucose levels.
A pump might be part of my dress.
No end in sight, no cure for this madness.

But everybody's like
low carb, Plexus, have you tried the paleo?
cinnamon, essential oil, blame the Coca-Coleo,
We don’t care, we’re just trying to get through our day.
But then the news is like
cure in 5 years, type 2 epidemic,
school lunch, heart disease,
obesity's systemic,
We're aware but I guess what we’re tying to say

Is that we'll never be normals (normals).
Too much sugar in our blood,
Your little snake oil cure sounds nice
You say they cured it in some mice?
I guess it's time to school you,
Raise the truth above the noise.
And baby I'll school you, (I'll school, I'll school, I'll school…)
This disease ain't no one's choice.

My friends and I—we've cracked the code.
#wearenotwaiting for the tech or Big Pharma.
We find support among ourselves.
We reach out online,
fight the fight together

Cuz everybody's like
low carb, Plexus, have you tried the paleo?
Cinnamon, essential oil, blame the Coca-Coleo.
We don’t care, we’re just trying to get through our day.

But then the news is like
cure in 5 years, type 2 epidemic,
school lunch, heart disease,
obesity's systemic.
We're aware, but I guess what we’re trying to say

Is that we'll never be normals,
Too much sugar in our blood.
Your little snake oil cure sounds nice.
You say they cured it in some mice?
I guess it's time to school you,
Raise the truth above the noise.
And baby I'll school you, (I'll school, I'll school, I'll school…)
This disease ain't no one's choice.

Ah, ah, ah,
A cure we may never see
But I love the D.O.C.
Ah, ah, ah,
Listen here to Sweetly Voiced
This disease ain't no one’s choice

You see we'll never be normals,
Too much sugar in our blood.
Your little snake oil cure sounds nice.
You say they cured it in some mice?
I guess it's time to school you,
Raise the truth above the noise.
And baby I'll school you, (I'll school, I'll school, I'll school…)
This disease ain't no one's choice.


Monday, September 15, 2014

D-Parody Special Request: So High Today

As a thank you gift for anyone donating $100 or more to my campaign for Diabetes Hands Foundation, I am offering you the opportunity for you to request a song for me to parody. My first $100 donor asked for Carole King's "So Far Away." Here you go, sir. Enjoy.



"So High Today"
a D-Parody of Carole King's "So Far Away"

So high today.
I can’t make my blood sugar stay in one place anymore.
It would be so fine to see a nice 1-0-4.
It doesn't help me when you question why today.
I don’t need your judgment when I’m not feeling good.
Now you’re asking me to order Chinese food.
Oh how I wish I could, but I’m so high today.

One more ride on the glucocoaster skyway.
I can't say it’s really anything new.
If I could only work this day out my way,
I'd rather spend it being ninety-two.

But I’m so high today.
I can’t make my blood sugar stay in one place anymore.
It would be so fine to see a nice 1-0-4.
Did my insulin spoil? I’ll change my vial today.
Yeah, oh why today?

Travelin’ around sure drops me down lower.
Nothing else to do but exercise.
I sure hope this rage bolus don't come to own me.
There's so many variables I've yet to analyze.

Cuz I’m so high today.
I can’t make my blood sugar stay in one place anymore.
It would be so fine to see a nice 1-0-4.
You know, I can’t be sure why I’m so high today.
Yeah, oh why today?
I’m so high today.