Showing posts with label Singing. Show all posts
Showing posts with label Singing. Show all posts

Thursday, May 16, 2013

Seasons of Love

Accomplishments Big and Small -Thursday 5/16 Link List
Today's PromptWe don’t always realize it, but each one of us had come a long way since diabetes first came into our life. It doesn’t matter if it’s been 5 weeks, 5 years or 50 years, you’ve done something outstanding diabetes-wise. So today let’s share the greatest accomplishment you've made in terms of dealing with your (or your loved one’s) diabetes.

5 weeks, 5 years, 50 years... I'm somewhere in between.
I'm going on 23 years into this.
Nearly 1200 weeks, over 8,000 days now, with a chronic disease.
How many days do I have left to go? What have I done so far?
Is having kids my ultimate accomplishment?
Will I ever see a Joslin medal?
Am I halfway through my life with diabetes? Or am I just beginning?
What will I do yet?
How do you measure?

In the words of Innigo Montoya, "No, there is too much. Let me sum up."
And let me do it in an ever-so lovable and slightly cheesy, Broadway style.



12 Million 29 Thousand 8 Hundred Minutes
12 Million 29 Thousand since my start
12 Million 29 Thousand 8 Hundred Minutes
How do you measure a diabetic heart?

In doctors, in blood tests,
In midnights, in cups of coffee,
In carb counts, in shots, in laughter, in strife,
In 12 Million 29 Thousand 8 Hundred minutes.
How do you measure my diabetic life?

How about love? How about love?
How about love? Measure in love
Seasons of love, seasons of love.

12 Million 29 Thousand 8 Hundred Minutes
12 Million 29 Thousand rises and falls
12 Million 29 Thousand 8 Hundred Minutes
How do you measure a hundred thousand close calls?

In truths that she learned,
Or in times that she cried,
In babies she birthed,
Or the way that she'll die?

It's time now, to sing out though the story never ends
I want to celebrate the love and support of my online friends.

Remember the love
(Oh, you got to, you got to remember the love)
Remember the love
(You know that life is a gift from up above)
Remember the love
(Share love, give love, spread love)
Measure in love
(Measure, measure your life in love)

Seasons of love
Seasons of love
(Measure your life, measure your life in love)
That's how I measure mine.

Monday, April 22, 2013

Orange Colored Sky

Today's Prompt: Day to Day. Write about something ordinary that’s inspiring to you, something simple, perhaps overlooked, that fuels your activism. Today’s post was recommended by Abigail of http://hiddencourage.wordpress.com/

I was walking along, minding my business,
when out of an orange-colored sky,
FLASH, BAM, ALAKAZAM,
wonderful you walked by...

The ordinary thing that fuels my advocacy is when I run into you in my daily life.

You might be the guy who installs my dining room flooring. You might be my labor and delivery nurse at the hospital. You might be my dental assistant last Saturday. But you're out there in everyone I meet.

I would never know you have diabetes except for I can't shut up about mine and that prompts you to tell me about yours. It frustrates you. Your numbers suck. You don't know what to eat. You don't think your doctor is helping you. You live with it. You live through it. But you're just treading water.

I tell you about what we are out here doing via social media. I give you my card and I circle the url for TuDiabetes.org. I might scribble my endo's name and phone number at the top. I might tell you about a particular blog I think you'd relate to.

But the most important thing I do is tell you not to blame yourself for where you are in your diabetes management. As Maya Angelou said, “Do the best you can until you know better. Then when you know better, do better.”

There I was at the dentist after a ten year absence. Ten years, seriously, since I'd been in. I'd been letting it slide. My teeth seemed fine. It was a medical thing I could shuffle to the back of my health closet and not think about. But it was time I got back on track. I'll go back in six months, too. I'm not going to chastise myself for the absence - it won't accomplish anything constructive. Instead, I'm going to congratulate myself for the return. Prodigal son, etc, etc.

It's what I urged my dental assistant to do. Don't beat yourself up because your numbers are high and your meds don't seem to work anymore. Start fresh. Find a new doctor. Get online. Share with others. Find out you're not in this alone. Then decide how far you want to take it.

As I said in a DHF board meeting last year, I believe what the online community offers is that there are opportunities here for each of us to Learn Something, Do Something, & Change Something. It's up to you how far you want to take it.

But meeting you always gives me a little punch. A jolt. A flash bam alakazam. This is why I do what I do.

And speaking of what I do, here's a little orangey jolt of fun.


Monday, September 17, 2012

A New Take on Twinkle

Hubster heard the little ones and me laughing so hard that I couldn't catch my breath, so he came in to see what all the fuss was about and I asked him to take video...

It seems I've found a fun, new way to sing Sweetie's favorite song. A little more her style, too.


boop boop boop boop!

Monday, October 17, 2011

Performance Anxiety

Earlier this month, my voice student with Type 1 confided in me that she had gone into an audition with a low blood sugar. It hadn't significantly affected her performance, but it was one more thing adding to her anxiety about an audition we'd been preparing for months - anxiety which included that she was also getting over a cold. She ended up getting selected to a choir still, but felt like she could have both performed and ranked better.

The teacher and the patient advocate in me encouraged her that she should have asked the moderator if she could audition out of turn - that it wouldn't have disrupted anything to have asked for that additional 6 minutes or so to eat her glucose tabs and get her head together.

But the performer and diabetic in me knows it's never that simple.

Saturday, I was dragging my feet getting ready for a singing gig at a local church where I'm on retainer as soloist and song leader. I gathered my music, headed to the church, practiced (and chatted) with the accompanist for half an hour, but I felt a little more tired than usual. A little less focused. In a 75-minute service, there were 14 different moments when I was to be up at the microphone leading the congregation. After the second song, it hit me.

I wasn't wearing my Dexcom.
I hadn't tested in a couple of hours and had no idea where my BG was.
I was low.

I slipped my hand into my purse on the floor and lifted my meter case, tried nonchalantly to test my BG in view of hundreds of people, saw the 54 mg/dL and the words "Treat your low blood sugar!" on the screen of my PDM, and slipped my hand back into my bag for my tube of glucose tabs. No sooner did I have a short stack of tabs in hand than it was time for me to walk up on the altar to the ambo to proclaim a very challenging psalm setting.

The whole time I sang the psalm, I tried not to think about the stack of chalky coconut and cherry tablets sitting on the chair at the bottom of the steps. I tried not to worry about missed pitches, sweaty forehead, slurred speech. I just tried to focus very carefully on the melody. It went off okay. A little on the autopiloty side, but nothing anyone particularly noticed.

What would my teacher or my doctor or my fellow advocates have encouraged me to do? It's a Catholic Mass and I'm a hired professional. It was time for the psalm. It's not like I'm going to interrupt a priest or make a public declaration of my immediate health needs to a congregation of 400 parishioners I barely know. "Just a minute, y'all. I needs my candy."

So I got up and sang. I did my job. And I popped g-tabs in between numbers for the next 10 minutes. By the liturgy of the eucharist, I was back to myself again.

And, at the risk of running long in this post, it made me realize how ingrained that suck-it-up-and-go habit is. It made me go back 13 years to my high school choral director and re-hate her with a passion, as I find myself doing on occasion. Re-hating her. Again and again.

While there were many talented kids in the high school show choir, I was barred from entry year after year despite talent or competitive successes. My junior year, she admitted to me that it was because she didn't want a diabetic in her dance/performance group. When I asked her what it would take to prove that my diabetes wouldn't be a problem, she said that she "had better never see it be a problem" in her class. She was a tough old bird with a lot of prejudices. And that was an ultimatum.

So, even though my class with her fell before lunch, I hid my blood sugar testing from her and took my injection between classes. When I had a low or a high that needed to be treated, I hid it from her. And I never scheduled appointments where they would interrupt her class. I essentially was asked to pretend I didn't have diabetes.

What she asked was unfair, unreasonable, and unhealthy.

But she finally put me in that show choir. And I hated every damn minute of it. When we'd arrive to sing for the Senior Citizens' luncheon and we'd be told we'd eat first, I'd take my lunchtime injection in secret and then be screwed as we found out we would not be eating for another hour - after a lengthy dance performance. I remember sitting on my partner's knee in a dance move with my blood sugar dangerously low, wondering if he would catch me if I'd pass out and fall backwards.

Considering what was asked of me at such a volatile age, I do feel like I gave my student good advice. Had she had her wits about her, I feel like her asking for a minute to take care of her needs would have been completely reasonable and have gone virtually unnoticed. But that's just it. When you have a low blood sugar, your wits are the first thing to go. Followed by your focus, your balance, and your confidence.

Whether you have a teacher in your corner who shames you and ridicules you the way mine so often did to her students or a teacher like myself who believes students' idiosyncrasies are the secret to their hidden strengths, the pressure of "the show must go on" is often just too much for performers. We get up and do what we have to do. There's just no room for diabetes under that spotlight.