Showing posts with label community. Show all posts
Showing posts with label community. Show all posts

Thursday, January 23, 2020

Peace be with you.

It may sound odd coming from me—an atheist—but much of what I learned about community started with the priests and pastors I worked with in the more-than-a-decade I served in music leadership positions for the Catholic and Episcopalian churches.

I worked for Father John Bell as his interim director of music for six months, and as a soloist and cantor for him for several years. I learned two very important lessons from John.
  1. I had a choir member who left in a huff. I don’t remember why. I wanted to go talk to them. I remember standing with John in the vestibule as he greeted his parishioners. He said to me, “The best thing to do is let them walk away.” He was right. I took that into my leadership of TuDiabetes and other diabetes communities.
  2. I was really short-handed in the choir for the 9am service. Two people singing. That was it. I had asked him to petition the congregation for volunteers. It hadn’t worked. He told me to “ask for a number.” “I need three women and two men to join the 9am choir.” The next Sunday, the chairs were filled. More than that came. It reminded me at the time of the advice to, in an emergency, ask a specific person for specific things. You—call 911. You—hold back the crowd and give us some space. You—lift up his head. It’s much more effective than “somebody help me.”
I learned ways to not run a community from priests I worked with, too.
  1. From the priest who ran our campus ministry in college, who would snap at me, call me clumsy, or complain about how he was mistreated by people in the community. When I encouraged him, in private discussion, to turn the other cheek, he snapped that those people weren’t Christ-like. I learned that good people can be wrestling with struggles that may cloud their judgment.
  2. From the pastor for whom I ran the children’s choir who made me wait an hour in the hallway and then dismissed the efforts of the children. “Oh, did they sing on Sunday? I didn’t notice.” At the Mass he presided over. I learned that indifference and impatience were forms of hostility. And that they broke trust.
Why do I mention all of this? Because people can be very good, and also very flawed. People can be driven to serve, and still be fallible. Growing our community takes all types, at all points in their journeys.

While I don’t believe in the god these men honored, I always believed in the communities we served.

Negativity builds cheap community. It’s easy to be riled up together. To sharpen pitchforks together. To picket industries together.


It’s harder to grow together. To mature together. To nurture patience and understanding together.

I’ve learned from both the special needs parenting community and the disability community to ask “What would be helpful right now?” And “what is that experience like for you?”

What can you do, today, to help someone grow in their journey? To reach out to someone struggling? To whom might you ask those questions today?

Monday, March 3, 2014

Best of the Betes Blogs: February 2014

It's my first time to host Best of the Betes Blogs!

February was quite a month for our community - with 2 awareness and advocacy initiatives at full throttle: Spare a Rose and Diabetes Art Day. A lot of wonderful posts surfaced this month and I am happy to point you to some great ones.
Best Use of Humor
Moira of Despite Diabetes: "Those questions we all get..."
I can't wait to use some of these suggestions in her handy guide for answering ignorant questions.

Best Vlog
George of Ninjabetic: "Back to D Future"
What would you tell Dr. Banting about living with Diabetes in 2014? How do you think he'd respond?

Best Recipe
Katy of Bigfoot Child Have Diabetes: "Waffle Factory Tour"
Katy and I are both going through the pangs of learning how to provide GF foods for our kids. And she is baking in bulk. This waffle recipe is low carb and tasty, too? Sign me up!

Best Use of Photography
Stephanie of robotPANCREASattack discovered a cool piece of street art that she had to share with us.

Best Advocacy
Yours Truly of Sweetly Voiced: "Snickers"
Well, this is awkward. If I didn't really REALLY believe in this post against bullying people with diabetes, I would never choose my own post for an award, but several people nominated it, so I'm just kowtowing to the fans today, okay?

Best Non-D Related Post
Heather of Unexpected Blues: "...Why I'll Never Be a Successful Writer"
Heather may feel like she's insulating herself from us with her gorgeous poetic imagery, but I always feel she lays herself bare with it and I adore her for it. Her metaphor of drowning in this post is one of the most beautiful things I've read in a long time.

Best Post by a Type 1
Meredith of With a Side of Insulin: "The Truth About Diabetes"
Meredith speaks to the fundamental truth about what it's like to live with an invisible and awfully temperamental illness.

Best Post by a LADA/ Type 1.5/ Not otherwise specified
Katy (again) of Bigfoot Child Have Diabetes: "Auto-Correct"
Katy gets a nod in two categories this month, which shouldn't ordinarily happen, but this is no ordinary situation. I really related to how she describes low blood sugar and my heart went out to her that it's from a perspective that a mom of a PWD doesn't ordinarily experience it.

Best Post by a Type 2
R.C. at The Fat Side of the Tracks: "What Do You See?"
A plea to HCPs to see the person and the effort...and not just the numbers.

Best Post by a Type Awesome
Wendy of Candy Hearts: "2014 Animas National Sales Meeting: I Was There for 15 Minutes"
I love a good comeback kid story. And if this opportunity helped Wendy find her words again, it was 15 minutes of awesome.

Best Story of a D-Mistake
Victoria of Victoria Cumbow: "Miss Manners got it right."
It wasn't Victoria's mistake, but she highlights where the Diabetes Online Community may have misstepped by not remembering our own manners when faced with outrage over an etiquette column.

Best Motivational Post
C of C's Life With D: "Why?"
Our CDEs devote countless hours of education and preparation to spend their careers helping people with diabetes succeed...but they can't get no respect. C asks us to think about the double standard we impose.

Best Diabetes Art
Reva of Type ONEderful: "Diabetes Art Day 2014"
This was certainly a tough category this month now that Diabetes Art Day has moved into February. Reva's 3-frame depiction of low blood sugar left me just sort of staring at the screen with my mouth open. Yes. Yes, exactly.

Best Comment
Linda made a comment to Katy that summed up what all Parents of PWD deserve to hear.

THANK YOU to all of those who made nominations and to all of those who were nominated this month. We couldn't do this without your participation and your passion for writing and sharing others' great writing.

Briley ~ inDpendence
Shannon ~ Neurotic City
Rachel ~ Probably Rachel
Scott ~ Rolling in the D
Kerri ~ Six Until Me
Alecia ~ SurfaceFine
Laddie ~ Test Guess and Go
James ~ T1DMe
Jacquie ~ Typical Type 1

If your name is above and you want to add the Best of the Betes Blog logo to your blog, change all "[ and ]" to "< and >" in this html code:

[div align="center"][a href="http://www.bestofthebetesblogs.com" target="_blank"][img src="http://momentsofwonderful.files.wordpress.com/2011/06/bbblogo-final-e1309479808835.png"][/a][/div]

Monday, March 18, 2013

My Favorite Six Year Old

I don't blog much about my nonprofit board work for either of the groups on which I serve as a director. The primary reason is that I care so deeply about the people and causes they represent that I don't want the potentially stupid things I might say to reflect on the organizations I cherish.

But today I wanted to post about the Diabetes Hands Foundation.

We are a nonprofit 501(c)(3) organization whose mission is to connect, engage, and empower people touched by diabetes so that no one touched by diabetes has to feel alone. Our communities - TuDiabetes, EsTuDiabetes, & Diabetes Advocates and our program Big Blue Test seek to bring PWD and their families the kind of engagement and support that did not exist when I was diagnosed.

My husband and I discovered TuDiabetes five years ago, just after they celebrated their first year online and just as we were embarking on our first year of marriage. I owe TuDiabetes everything.

The answers, the empathy, the feeling that I was NO LONGER ALONE...I could "come out" about how challenging life with diabetes was. And my friends' suggestions there made my days less challenging.